Fatigue

Rachel first wrote:

Hello. Gary Sullivan of the MS Society forwarded me your note, as I am writing the story about MS and fatigue. May I send you a few more questions
about your experience, especially as it has affected work and daily activities
such as driving?

Thank you.
--
Rachel Adelson

And then, when I said yes:

Thanks.

- First things first, where are you located?

- How would you describe the career you had when you were able to work full time?

- Now that you telecommute, what kind of work is that? Do you need to be available during set hours,
or is it work you can complete when you are able, as long as you meet a general deadline?

- Is this a spinoff from prior employment, or something new? Did you need to change fields to
obtain this more flexible P/T setup? Did you broach the subject of MS/fatigue with your employer?

- What advice would you give someone deciding to make a similar transition in employment?

As for driving, this is interesting -- sounds almost like narcolepsy, falling asleep at the wheel.
No other materials on fatigue mentioned the risk to driving, so can you say a little more
about this, is sleepiness the main issue, mental fatigue, combination? Do you know of
others with MS who report this problem? How much is this affecting your ability to get
out and about, and are other alternatives available in your area?

I hope you had fun at that New Year's Eve party, by the way. I actually was home sick myself!
(too-powerful antibiotic - overkill)

- Finally what things other than walking do you try to stay in shape? Walking is highly recommended
for people in all conditions, but what else do you enjoy and how does it interact with/help with
fatigue? When you're tired, how do you ensure you get exercise regardless?

Thanks so much for your help.

So - that's a lot to answer!

Next 2 postings will contain my replies.